Hi All!
Here we have been home for 10 days and loving it! Caitlyn is doing well. Still tired but not quite as much as before. She spent the March Break just hanging out. She went to a scrap booking class one day and to her sister's hockey tournament in Mitchell on Thursday to Saturday, spending some time in the hotel with the team.
Well today she went to school all day (a little tired after school but nothing a 2 hour nap wouldn't help).
We are currently on her 4 week break from treatment and are trying to decrease her Decadron (for the swelling in her brain). We are currently down to 4 mg a day from 12 mg a day when she finished treatment. She will be having a MRI sometime in the next 2 1/2 weeks and has a follow up appointment on April 5th to assess the tumour and to start her on the next round of chemo.
We are currently counting down the sleeps until Disney world also and everyone is very excited.
Well we will update the blog following the trip to Disney to let everyone know all about it!!!
Talk soon
The Cobeans
Monday, March 19, 2007
Friday, March 9, 2007
March 9
Hi all
Caitlyn is done!!! Her first round of chemo finished last Sunday night and her radiation finished on Wednesday!! We stayed in Toronto until today as she had an appointment yesterday with oncology and today with her orthopedic doctor (who fused her ankle in December), then we headed home in the sunshine.
She is feeling much the same, tired! But very excited to be home for a change. She has a follow up on April 5th with oncology and she will have a MRI prior to that to assess the tumour. If all is well, she will start into the next round of chemo which she can do here at home.
Caitlyn is now looking forward to her trip to Florida from the Children's Wish Foundation that we will be taking later this month before she starts the next round.
So, all is well, and we are glad to be home and a family again. It will take some adjusting again! Thank you everyone for all the emails, entries on her blog and calls, they all helped to make the last 7 weeks go by quickly!
Thanks again
The Cobeans
Caitlyn is done!!! Her first round of chemo finished last Sunday night and her radiation finished on Wednesday!! We stayed in Toronto until today as she had an appointment yesterday with oncology and today with her orthopedic doctor (who fused her ankle in December), then we headed home in the sunshine.
She is feeling much the same, tired! But very excited to be home for a change. She has a follow up on April 5th with oncology and she will have a MRI prior to that to assess the tumour. If all is well, she will start into the next round of chemo which she can do here at home.
Caitlyn is now looking forward to her trip to Florida from the Children's Wish Foundation that we will be taking later this month before she starts the next round.
So, all is well, and we are glad to be home and a family again. It will take some adjusting again! Thank you everyone for all the emails, entries on her blog and calls, they all helped to make the last 7 weeks go by quickly!
Thanks again
The Cobeans
Friday, March 2, 2007
March 2
Hi all
Here we are with only 3 radiation treatments left! Hard to believe that we have been here 6 weeks already!
Caitlyn is doing well still. Tired! She has been to physiotherapy and occupational therapy this week for the weakness on her right side. The weakness is subtle and as Caitlyn looks back she believes that the leg weakness has been there all along, but with being in a cast on the left leg it was hard to assess until she got the cast off. The feeling is starting to come back with the excerises and the massaging of the leg and arm.
The doctors are starting to decrease her Decadron (steriod for the swelling in her brain) again. The hope is to get her off them completely, but this is going to be a gradual process. The doctor is impressed though, with the little weight gain that she has had during all these steriods which usually increase your appetite and cause weight gain.
Caitlyn will be finishing this round of chemo on Sunday and radiation will be over on Wednesday. She will then have four weeks off from treatment and will start into the next round after that, which involves being on chemo for 5 days every 6 weeks for 6 rounds. This chemo is going to be by mouth again, therefore we can complete that at home with regular visits to Sick Kids, but at least we will be home with the rest of the family.
Thanks again for all the comments, they certainly bring a smile to Caitlyn's face when she reads them.
The Cobeans
Here we are with only 3 radiation treatments left! Hard to believe that we have been here 6 weeks already!
Caitlyn is doing well still. Tired! She has been to physiotherapy and occupational therapy this week for the weakness on her right side. The weakness is subtle and as Caitlyn looks back she believes that the leg weakness has been there all along, but with being in a cast on the left leg it was hard to assess until she got the cast off. The feeling is starting to come back with the excerises and the massaging of the leg and arm.
The doctors are starting to decrease her Decadron (steriod for the swelling in her brain) again. The hope is to get her off them completely, but this is going to be a gradual process. The doctor is impressed though, with the little weight gain that she has had during all these steriods which usually increase your appetite and cause weight gain.
Caitlyn will be finishing this round of chemo on Sunday and radiation will be over on Wednesday. She will then have four weeks off from treatment and will start into the next round after that, which involves being on chemo for 5 days every 6 weeks for 6 rounds. This chemo is going to be by mouth again, therefore we can complete that at home with regular visits to Sick Kids, but at least we will be home with the rest of the family.
Thanks again for all the comments, they certainly bring a smile to Caitlyn's face when she reads them.
The Cobeans
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