Hello all
Things are going well here. Caitlyn is still having physio/occupational therapy 3 times a week which is proving to be a great benefit to her right side. Her hand is becoming more and more useful and her walking has improved. The extremely nice weather this weekend certainly helped also as she was out playing basketball, baseball and on the trampoline (with help). All of these are helping her regain the strength in that right side.
She was feeling well enough to go to school this week, but her White blood cell count was low making her more susceptible to infection so I kept her at home, much to her dismay. She found it a little boring! Thanks to friends and family to help keep her company when we were at work.
We are going back to Toronto on Tuesday of this week as she has testing all day on Wednesday for a neuropsychological assessment which will assess her needs for school. Then we are back down to Toronto again the following Monday for an appointment with her neurosurgeon and her oncologist.
Well best go and thanks again for all the prayers and help thus far, it is certainly helping!!!
Thanks
Rona
Sunday, April 22, 2007
Monday, April 16, 2007
April 16th
Hello all
All is going well here at home. Caitlyn finished her first round of chemo last Monday night. She faired well from it. She was more nauseated from this round and laid around for the weekend, but is feeling better now. She now has 37 days off of chemo and is having blood taken weekly, which last weeks was still very good and all within the normal range.
She went to school last Friday for the afternoon which went well, then went to the show and to a friend's house. She slept alittle more to make up for it but had fun while doing it. She is planning on going to school a bit more this week and we are in the process of getting some things in place to help her out with her school work.
Physio and occupational therapy is continuing and going well. She has weakness on the right side of her body so is exercising and strengthening the leg and arm.
Thank you to all who have supported us so far in pledges and joining us in Meagan's walk in Toronto on May13th to raise money for pediatric brain tumour research.
Until next time
The Cobeans
All is going well here at home. Caitlyn finished her first round of chemo last Monday night. She faired well from it. She was more nauseated from this round and laid around for the weekend, but is feeling better now. She now has 37 days off of chemo and is having blood taken weekly, which last weeks was still very good and all within the normal range.
She went to school last Friday for the afternoon which went well, then went to the show and to a friend's house. She slept alittle more to make up for it but had fun while doing it. She is planning on going to school a bit more this week and we are in the process of getting some things in place to help her out with her school work.
Physio and occupational therapy is continuing and going well. She has weakness on the right side of her body so is exercising and strengthening the leg and arm.
Thank you to all who have supported us so far in pledges and joining us in Meagan's walk in Toronto on May13th to raise money for pediatric brain tumour research.
Until next time
The Cobeans
Friday, April 6, 2007
Update on Appointment
HOORAY!!!!!!!!!!
We were at Sick Kids yesterday for Caitlyn's MRI and check up. The MRI was to assess the tumour since the radiation and 1st round of chemo. The tumour has SHRUNK!!!!!!!! and the swelling of her brain is completely gone. The doctors were quite pleased. Now we can get her completely off the steroid that she has been on!!
So last night was her first night of the second round of chemo. The chemo she is taking is in pill form, so we just administer it to her here at home. She takes it for 5 days then will have 37 days off. This 6 week cycle will repeat then, 5 more times. That will take us until December or so but that is okay if it keeps it at bay. They will be doing a MRI every 3 months to assess the tumour, but so far so good!!!!!
Certainly put a smile on all of our faces!!!! :)
On another note, there is a Walk being held in Toronto on Mother's Day to support BRAIN child which is an organization for brain tumour children and their families. This event is an enormus fundraiser for brain tumour research. We are forming a team to attend this event, so if anyone is interested in attending with us, please email us at cobeanclan@bmts.com . There is a website to explain this walk a bit better and it is www.meaganswalk.com
Thank you to all of you for all the ongoing support and prayers you have gave us.
The Cobeans
We were at Sick Kids yesterday for Caitlyn's MRI and check up. The MRI was to assess the tumour since the radiation and 1st round of chemo. The tumour has SHRUNK!!!!!!!! and the swelling of her brain is completely gone. The doctors were quite pleased. Now we can get her completely off the steroid that she has been on!!
So last night was her first night of the second round of chemo. The chemo she is taking is in pill form, so we just administer it to her here at home. She takes it for 5 days then will have 37 days off. This 6 week cycle will repeat then, 5 more times. That will take us until December or so but that is okay if it keeps it at bay. They will be doing a MRI every 3 months to assess the tumour, but so far so good!!!!!
Certainly put a smile on all of our faces!!!! :)
On another note, there is a Walk being held in Toronto on Mother's Day to support BRAIN child which is an organization for brain tumour children and their families. This event is an enormus fundraiser for brain tumour research. We are forming a team to attend this event, so if anyone is interested in attending with us, please email us at cobeanclan@bmts.com . There is a website to explain this walk a bit better and it is www.meaganswalk.com
Thank you to all of you for all the ongoing support and prayers you have gave us.
The Cobeans
Monday, April 2, 2007
April 2nd
Hi all
Here we are home from Disney. What a trip!!!!!!!!!! We were at a theme park everyday. Most days didn't start until 11 am and we were back to the resort by 5 pm for a nap. We had a great time!! The Children's Wish foundation had everything planned and made the trip a wonderful experience. What a great group of people at the Wish foundation. A great big thanks to Angela and Sarah at the Children's Wish Foundation for providing our family with such a great experience.
Caitlyn is doing well. She was tired from the trip but she did nap most days while we were there. She has a cold right now which is making her even more tired. We are hoping that it is better by Thursday when she goes back to Sick Kids for a MRI and a follow up with the oncologists to start her on the next round of chemo. Yes, it has been 4 weeks since she finished her radiaiton, and it is hard to believe. This time the chemo will effect her blood counts and make her more suseptible to infection.
She returned to school prior to Disney for a couple of part days, but she is not likely to go to school this week, as we really want this cold to clear up. She also met with physio and occupational therapy this morning so she will be starting this week with that and hopefully regain her strength in her right side.
So best go and will update all after the visit this week.
Rona
Here we are home from Disney. What a trip!!!!!!!!!! We were at a theme park everyday. Most days didn't start until 11 am and we were back to the resort by 5 pm for a nap. We had a great time!! The Children's Wish foundation had everything planned and made the trip a wonderful experience. What a great group of people at the Wish foundation. A great big thanks to Angela and Sarah at the Children's Wish Foundation for providing our family with such a great experience.
Caitlyn is doing well. She was tired from the trip but she did nap most days while we were there. She has a cold right now which is making her even more tired. We are hoping that it is better by Thursday when she goes back to Sick Kids for a MRI and a follow up with the oncologists to start her on the next round of chemo. Yes, it has been 4 weeks since she finished her radiaiton, and it is hard to believe. This time the chemo will effect her blood counts and make her more suseptible to infection.
She returned to school prior to Disney for a couple of part days, but she is not likely to go to school this week, as we really want this cold to clear up. She also met with physio and occupational therapy this morning so she will be starting this week with that and hopefully regain her strength in her right side.
So best go and will update all after the visit this week.
Rona
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