Well Caitlyn finished her chemo on Monday night and so far so good. She had very little vomiting but was plagued with some nausea. She didn't end up going to Owen Sound hospital because she was not sick enough. Maybe it helps to have everything in place. Murphy's law I guess. I believe with all the changes they made this time there was success. Also now that her dilatation level is coming down she is feeling a lot better & walking much better!Now I hope I am not talking too soon and it comes back but for right now she is feeling good & looking good. She started at the pool again today and worked hard at it. Well must go but will keep you up to date.
Thanks again for all your love and support.
Caitlyn & Rona
Wednesday, August 22, 2007
Friday, August 17, 2007
Round 4
Hello all
Well we were in Sick Kids yesterday. Caitlyn's platelet count came up to 125 yesterday, so it was a go ahead for chemo. They adjusted her chemo slightly due to her 22 pound weight loss. They have started her on a steriod for 3 days of her chemo with the potential of taking it a couple more days if need be.
Her Dilantin level was checked yesterday in her blood. Her dilantin is for her seizures and periodically it needs to be checked to see if she has enough in her system to ward off seizures. It was checked in May and found to be low and she had a partial seizure at that point. They increased her Dilantin at the point and we checked a few weeks after to be found that it was fine. Well yesterday it was extremely high, which could explain the symptoms she has been having like, slurred speech, fatigue, weakness, and trouble walking. Therefore meds have been changed and we are hopefully that these symptoms will change for the better.
Well, we will keep you updated as to how this round pans out.
The Cobeans
Well we were in Sick Kids yesterday. Caitlyn's platelet count came up to 125 yesterday, so it was a go ahead for chemo. They adjusted her chemo slightly due to her 22 pound weight loss. They have started her on a steriod for 3 days of her chemo with the potential of taking it a couple more days if need be.
Her Dilantin level was checked yesterday in her blood. Her dilantin is for her seizures and periodically it needs to be checked to see if she has enough in her system to ward off seizures. It was checked in May and found to be low and she had a partial seizure at that point. They increased her Dilantin at the point and we checked a few weeks after to be found that it was fine. Well yesterday it was extremely high, which could explain the symptoms she has been having like, slurred speech, fatigue, weakness, and trouble walking. Therefore meds have been changed and we are hopefully that these symptoms will change for the better.
Well, we will keep you updated as to how this round pans out.
The Cobeans
Tuesday, August 14, 2007
Platelets up slightly
Hello all
Bloodwork yesterday showed us that her platelets are up to 87 from 68 last week. So at least it is going up and no longer down. We figured that there would not be chemo this week, but we got a call from Sick Kids today to tell us to come down on Thurs. They will do her blood work again, and are anticipating that her count will be up even more. They will start her chemo this week, then. The plan is that they are going to decrease her dose, (being as she has lost 20lbs), they are going to put her on a steriod for the days she is on chemo and they have changed her nausea medication. With all this and the fact that she will be admitted to Owen Sound hospital should make this round better.
She is feeling pretty good, having trouble with the walking department because she became so weak with the last round of chemo, but as soon as she feels better from this round, it is back to the grind stone with therapy. She hasn't been able to do much therapy this summer with the chemo and then we were away.
Anyway, I will update you after Thursday's appointment.
Take care
The Cobeans
Bloodwork yesterday showed us that her platelets are up to 87 from 68 last week. So at least it is going up and no longer down. We figured that there would not be chemo this week, but we got a call from Sick Kids today to tell us to come down on Thurs. They will do her blood work again, and are anticipating that her count will be up even more. They will start her chemo this week, then. The plan is that they are going to decrease her dose, (being as she has lost 20lbs), they are going to put her on a steriod for the days she is on chemo and they have changed her nausea medication. With all this and the fact that she will be admitted to Owen Sound hospital should make this round better.
She is feeling pretty good, having trouble with the walking department because she became so weak with the last round of chemo, but as soon as she feels better from this round, it is back to the grind stone with therapy. She hasn't been able to do much therapy this summer with the chemo and then we were away.
Anyway, I will update you after Thursday's appointment.
Take care
The Cobeans
Friday, August 10, 2007
No chemo this week
Hello all
Well, my thoughts were confirmed. Caitlyn's chemo has been held off as her platelets are still low. They need to be above 100 before they can give her the next round of chemo. We will be doing her bloodwork on Monday to see where we are at and if we can start chemo next week. She is certainly enjoying the fact that she has another week or so to feel good. And that she is right now (feeling good). She was back to the pool yesterday for therapy which seems to have helped with her walking. Well that is about it and we will report back in next week with her blood counts.
Til then,
Rona
Well, my thoughts were confirmed. Caitlyn's chemo has been held off as her platelets are still low. They need to be above 100 before they can give her the next round of chemo. We will be doing her bloodwork on Monday to see where we are at and if we can start chemo next week. She is certainly enjoying the fact that she has another week or so to feel good. And that she is right now (feeling good). She was back to the pool yesterday for therapy which seems to have helped with her walking. Well that is about it and we will report back in next week with her blood counts.
Til then,
Rona
Tuesday, August 7, 2007
Home from holidays
Hi all
Sorry for the lack of postings lately. Caitlyn is doing really good right now. She went to Camp Kintail from July 22 until July 28. She had a great time there!!! She has had lots of stories to tell us since. We get daily stories from camp. She had great counsellors and cabin mates.
We picked her up in the morning of the 28th and we left that afternoon for the family cottage, which is near North Bay. We returned home from the cottage yesterday. We all had a great time and Caitlyn got in the lake while up there. She had a blast!!
She is feeling good right now, eating and drinking well. She is starting to be able to walk around on her own again. Because she was sick with the last chemo, and became so weak, she was not walking around without help. During camp she was in a wheelchair because it was easier to get around. Therefore she has to retrain her body to walk around on her own again, but she is doing well.
She is to start chemo this Thursday but her platelet count is still low. Her platelets have been at 67-68 for the last 3 weeks. Apparently her platelets need to be above 100 before she starts her next round so I guess we will be holding off of chemo for now. I will need to talk to Sick Kids tomorrow before I can say for sure but it looks like we will be doing her bloodwork again next week to see if it is above 100 to start then. She is excited about that because she is feeling so good right now she doesn't want to ruin it.
Well I will update again when I find out for sure if chemo is postponed.
Rona
Sorry for the lack of postings lately. Caitlyn is doing really good right now. She went to Camp Kintail from July 22 until July 28. She had a great time there!!! She has had lots of stories to tell us since. We get daily stories from camp. She had great counsellors and cabin mates.
We picked her up in the morning of the 28th and we left that afternoon for the family cottage, which is near North Bay. We returned home from the cottage yesterday. We all had a great time and Caitlyn got in the lake while up there. She had a blast!!
She is feeling good right now, eating and drinking well. She is starting to be able to walk around on her own again. Because she was sick with the last chemo, and became so weak, she was not walking around without help. During camp she was in a wheelchair because it was easier to get around. Therefore she has to retrain her body to walk around on her own again, but she is doing well.
She is to start chemo this Thursday but her platelet count is still low. Her platelets have been at 67-68 for the last 3 weeks. Apparently her platelets need to be above 100 before she starts her next round so I guess we will be holding off of chemo for now. I will need to talk to Sick Kids tomorrow before I can say for sure but it looks like we will be doing her bloodwork again next week to see if it is above 100 to start then. She is excited about that because she is feeling so good right now she doesn't want to ruin it.
Well I will update again when I find out for sure if chemo is postponed.
Rona
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